Thursday, April 29, 2010

Travel and Cancer Survival, Part Two


Even though I was slower than usual on the trip to Scotland after my cancer surgery, and needed to take daily naps, I still enjoyed the trip and was able to participate in everything I wanted to do. When we returned to the U.S. I had the radiation implant for three days, followed by a short course of external radiation to catch any cancer cells that might have escaped.

That's when I found out about the real fatigue of radiation treatment. I put aloe vera on my skin after each external treatment, so I didn't get the painful burns many people get, but I could not avoid the exhaustion. I found that if I didn't schedule an hour's nap every day, I couldn't get through my work.

The need for a daily nap was not permanent, but did continue for over a year. I did, though, permanently lose the ability to pull an all-nighter, or to go on 3-4 hours of sleep and still do a full day's work. Those restrictions would probably have crept up on me in the next few years due to age, but the cancer treatment brought them on all at once.

Napping has always been one of the pleasures of vacationing for me, so at least I didn't have to try to add nap time to travel. But what I did find was that more and more I could not go the places I wanted to go.


Now you have to understand that I've never been a mountain climber or even a rock climber--I'm no great athlete and neither are the people I travel with. But we've always climbed reasonable hills, or up onto castle towers and parapets. We hike woodland trails, cross rivers on stepping stones, and scramble over lots of uneven ground.

But even after I was healed from my surgery and recovered from radiation fatigue, I found to my dismay that there were now places I could not go. I could negotiate ordinary stairs, but the high steps or rocky places, where you must pull yourself up two or three feet at once with no railing or tree root to grab onto, started to prove impossible. Or we would be hiking in a nature preserve, and the trail would become steep and narrow. Suddenly I could not trust my balance.

Several times I either fell or was simply unable to go forward--and I was holding my companions back because of my limitations. I felt awful.

Then one summer Lois and Eric and I didn’t go abroad. Instead we went to a lovely area called the Grand Canyon of Pennsylvania. We drove and walked around, stayed in a secluded cabin where the deer came right into the yard, and even dared rubber rafting down a river (though not through rapids). I enjoyed the trip—but I kept having problems I had never had before.

After we successfully moored our raft, I fell trying to negotiate the uneven path to the parking lot. I wasn’t hurt other than some scratches, because the one value I got out of taking yoga lessons years ago was that I learned how to fall. Still, it’s no fun--despite faithfully going to exercise class twice a week--not to be able to maintain my balance on unstable footing. I keep assuming I can go places that used to be no challenge, and finding myself in trouble.

The next day we hiked one of the nature trails—not a particularly difficult one until we came to an offshoot leading down to a waterfall Lois wanted to see. Lois loves waterfalls, and the fact that there was one was our reason for choosing to hike that particular trail.

The path down to the falls was narrow, steep, and uneven, and after a few steps and a slide into a tree that I hung onto for dear life, I realized that I just could not go down that path, or expect to climb back up if I did get down.

So I went back up to the top of the offshoot trail and found a place to sit and rest while Lois and Eric went down to see the waterfall. Oh, it was a lovely summer day, and I saw birds and squirrels, chipmunks and butterflies—but I wasn’t where I wanted to be.

When Lois and Eric returned, we continued along the main trail, which I was able to negotiate. But then Eric found a stick--not a twig, but a stout and fairly straight stick about five feet long. He gave it to me to use as a walking stick--and suddenly it was much easier to walk.

I had never used a walking stick before, but it's intuitive. The stick provides two advantages over just walking without one: with your feet it provides the third point of a stable triangle, and in those places where you need your arms to help pull yourself up an incline, it gives you something to hold onto.

I used the stick Eric gave me for the rest of our hiking, but didn't try to take it home. Instead, when I got home I bought an expandable/collapsible walking stick that I have used ever since. It's adjustable--it can be a cane for support in most situations, and expand into a walking stick for hiking.

Davis & Sanford TRAILBLAZRV Trailblazer Monopod

A walking stick doesn't make me any faster, but it does make it possible once again for me to go anywhere I want to go. If you've read my blogs about my trips to Japan, India, and Nepal, you have read about how I use my stick.

If you are not handicapped, but if something like cancer or arthritis or plain old age has slowed you down, let me suggest that you try getting a stick for travel. You'll be steadier and feel more secure. Unless your doctor prescribes a certain kind of cane, I recommend an inexpensive collapsible stick rather than a rigid cane. Choose one with a wrist strap so you can let it hang when you need to use two hands for something. You can often find a camera monopod that will do double duty as your walking stick (I think of it as my stick doing occasional double duty steadying my camera).

The important thing I hope you will get from my experience is that there is no escaping some limitations after a serious disease like cancer. However, cancer definitely does not mean that you have to stop traveling. Find out what you need to do and do it! Then continue to go where you please.

You may decide to change your mode of travel, perhaps try a cruise instead of a tour, or a tour instead of individual wandering. You may shift from traveling alone to traveling with friends. Whatever you do, though--don't give up traveling!
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Thank you to everyone who filled out the survey on cancer experience. You may have now decided that you would like to do something to support cancer research. If you can't attend a local Relay, then please support a Relay for Life team.

You don't have a team to support? Then please support mine, the 8th Wonders. All of us on the team are breast cancer survivors, and we got our name from the fact that one in every eight women will get breast cancer in her lifetime. To support my team, just click on this link, and make a contribution online. Your money goes directly to the American Cancer Society, but our team is credited with your donation.

For a cookbook to complement cancer treatment with nutrition, click here.

Click here for Seven Reasons to Visit India.

The series of posts on my trip to Japan begins here.

The journal of my trip to India and Nepal begins here.

The series of posts on my trip to Italy begins here.

Geezer-Chick's guest blog on York, England is here.

Geezer-Chick's guest blog about a fabulous carousel is here.

MATERIAL CONNECTION DISCLOSURE: You should assume that the author of this blog has an affiliate relationship and/or another material connection to the providers of goods and services mentioned in this message and may be compensated when you purchase from a provider. You should always perform due diligence before buying goods or services from anyone via the Internet or offline.

Thursday, April 22, 2010

Travel and Cancer Survival, Part One



In the United States, Relay for Life 2010 has just begun, and will continue for the next two months. If you are not familiar with Relay, it's an annual series of gatherings of cancer survivors and friends who work together before the event to raise money for cancer research. Businesses and clubs form teams who raise funds, then go to Relay to walk all night in support of a cure. Survivors are honored, and those who have passed on are remembered. Every year we note the progress that has been made toward curing cancer and eventually putting it in the past, along with bubonic plague, polio, and smallpox.

Great strides have been made, but the fight is not won. I'm a survivor of two different kinds of cancer, which were fortunately common ones that had reliable treatments available--but only because of the research that had already been done. If those treatments had not been available, especially for the type of breast cancer for which I had a form of radiation which was then experimental but now is standard of care, I would probably not be here writing this blog.

As I write, a dear friend with a rare form of cancer is fighting for his life. We still need more research, and not only to save lives. We also need to improve treatments so that they do not destroy survivors' quality of life in order to preserve quantity.

Which brings me to the subject of this blog: travel for the cancer survivor. If you have been reading my blog with any regularity, you know that I travel often, sometimes to far-flung parts of the world. You've read about my trips not only to familiar European countries (practically next door) or ultramodern Japan, but also to India and Nepal. My goal is to do what I want to do, and allow cancer to interfere with my life as little as possible.

My first experience with cancer was finding a lump in my breast in spring of 2001. It turned out to be cancer, but fortunately I found it early (it had not shown on a mammogram only six months earlier). Treatment was a lumpectomy and radiation--but for the particular kind of cancer it turned out to be, the recurrence rate was an unacceptable 30%. I started researching, and found that brachytherapy (implantation of radioactive pellets where the cancer had been) reduced recurrence to 5%.

As usual, I had a trip out of the country planned for that summer--this one to Scotland with my friend Lois and her husband Eric. Lois and I wanted to do some research for our children's books about the Loch Ness monster. My good fortune was that Eric was doing cancer research at a teaching hospital, and knew a doctor who was already doing brachytherapy for breast cancer. He managed to get me into the program.

As things worked out, our trip to Scotland fell in between the surgery and the radiation treatment. I had lived a charmed life, and never required surgery before. Those of you not so lucky know how even a very simple surgery like a lumpectomy takes away strength and endurance for weeks and months afterward. Even though I did not yet have the fatigue that radiation treatment produces, on that trip I experienced for the first time the inability to keep up with my friends.

I will continue this blog next week, with tips for enjoying travel even when you are not in the best of physical condition.

In the meantime, if you have enjoyed these blogs, may I ask you to do something for me? Please fill out a survey designed to make you think about how cancer affects your life even if you have never had the disease yourself. It's short--only six questions, and anonymous. You will not even be asked for your email address. Survey Click Here

After you take the survey, you may decide that you would like to do something to support cancer research. If you can't attend a local Relay, then please support a Relay for Life team.

You don't have a team to support? Then please support mine, the 8th Wonders. All of us on the team are breast cancer survivors, and we got our name from the fact that one in every eight women will get breast cancer in her lifetime. To support my team, just click on this link, and make a contribution online. Your money goes directly to the American Cancer Society, but our team is credited with your donation.

After these two entries, The House of Keon will return to stories of my travels, with lots of pictures.
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For a cookbook to complement cancer treatment with nutrition, click here.

Click here for Seven Reasons to Visit India.

The series of posts on my trip to Japan begins here.

The journal of my trip to India and Nepal begins here.

The series of posts on my trip to Italy begins here.

Geezer-Chick's guest blog on York, England is here.

Geezer-Chick's guest blog about a fabulous carousel is here.

MATERIAL CONNECTION DISCLOSURE: You should assume that the author of this blog has an affiliate relationship and/or another material connection to the providers of goods and services mentioned in this message and may be compensated when you purchase from a provider. You should always perform due diligence before buying goods or services from anyone via the Internet or offline.

Tuesday, April 13, 2010

Philadelphia Carousel



Guest post from Geezer-Chick

I usually bike around Philadelphia. But when my niece was visiting, we walked from Chinatown to Grasso's Magic to watch 3 local magicians. En route we passed Franklin Square, which I hadn't explored before. From the sidewalk, we could see a merry-go-round. "Want to go look at the ride?" asked my niece. As we approached, it became obvious that this is no ordinary merry-go-round.

Up front is a Philly Phanatic -- don't ask me which sport he's the mascot for -- he's cute and green and I'm amazed I even know his name. I'm not a sports fan.

Then we saw the lion.



And a dragon.
A zebra and cat with a fish in its mouth.




A seal.



An elephant.



An eagle.



And of course there are horses.

Franklin Square is at 7th an Race in downtown Philadelphia. It has bike parking, and it's not far from several bus routes.

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Buy & Sell Antiques. Click Here!

Learn About Antiques and Collectibles. Click Here!

Click here for Seven Reasons to Visit India.

The series of posts on my trip to Japan begins here.

The journal of my trip to India and Nepal begins here.

The series of posts on my trip to Italy begins here.

Geezer-Chick's guest blog on York, England is here.

MATERIAL CONNECTION DISCLOSURE: You should assume that the author of this blog has an affiliate relationship and/or another material connection to the providers of goods and services mentioned in this message and may be compensated when you purchase from a provider. You should always perform due diligence before buying goods or services from anyone via the Internet or offline.

Wednesday, April 7, 2010

Japan, Post Eleven



Impressions of Japan

I think what I carried away with me from Japan were the impressions of friendliness, cleanliness, honor, and beauty. Everywhere we went, people were friendly and helpful. For example, I ventured alone into a huge shopping mall in Yokohama. I had a map of the mall, but ran into a "you can't get there from here" situation in which I could not figure out which elevator or escalator would take me to a shop I wanted to visit.


I began asking people if they spoke English, and very quickly a young man said, "My wife." He then led me to where his wife was shopping while pushing their baby in a stroller. Her English was good, yet she could not describe the complicated route from where we were to the store I wanted to go to.

So, the couple dropped what they were doing and took me up an escalator and across a bridge to an elevator that took us to a section where three stores were in a cluster disconnected from the rest of the mall except by that circuitous route. That kind of courtesy and helpfulness is typical of what I experienced everywhere in Japan.


Cleanliness is inherent to the Japanese character. You simply don't see clutter, litter, or trash anywhere. As foreigners, we tried hard not to violate Japanese custom, taking our shoes off before entering homes or temples (in one temple I was actually given a little paper cap to go over the bottom of my cane), and being careful not to litter or clutter.

Japan is also a very safe country. Not only do you feel safe wandering alone, but your property is not only safe from theft, it is even safe from your own carelessness. In our tour group were a couple traveling with their teenage son. The night we arrived, jetlagged, the boy left the family's iPhone on the sink in the airport men's room. At the introductory meeting at the hotel, the parents were very much upset with their son for losing it.

But the next day the phone was restored to them at the hotel. Someone found it and turned it in. Someone else managed to find identification on it, and somehow they found the address of the hotel where we were staying. In virtually any other country, that family would never have seen the phone again. In Japan, obviously more than one person put time into tracing the owners and restoring it to them.

Finally, I carry with me how beautiful everything is in Japan, from food to gardens to architecture. Clearly it is a country of people who appreciate beauty, and make the effort to surround themselves with it.

Here are some photos that didn't fit into my blog posts. Enjoy!



















Next week: a guest post from Geezer-Chick, with photos of the most beautiful carousel I've ever seen.

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Learn to Speak Japanese

How to import a car from Japan. Click here.

Click here for Seven Reasons to Visit India.

This series of posts on my trip to Japan begins here.

The journal of my trip to India and Nepal begins here.

The series of posts on my trip to Italy begins here.

Geezer-Chick's guest blog on York, England is here.

MATERIAL CONNECTION DISCLOSURE: You should assume that the author of this blog has an affiliate relationship and/or another material connection to the providers of goods and services mentioned in this message and may be compensated when you purchase from a provider. You should always perform due diligence before buying goods or services from anyone via the Internet or offline.